Patient forum support group
The EAAA Aftercare service can make introductions to EAAA’s Patient Forum Group to help shape the future of EAAA if a patient or their family feels they would like to be further involved with the charity.
The views and experiences of the people helped by EAAA are integral to decision-making and supporting the charity as it moves forward to improve patient outcomes and support for families, not just in terms of Aftercare but charity wide. Through EAAA’s Patient Forum Group, friendships and connections with people who have been in similar situations can also be forged.
The group meets quarterly and offers a platform for patients and relatives to offer their thoughts and feedback. Their views are integral to decision-making and provide scrutiny of EAAA decisions. We listen and learn from former patients and their families, and their experiences when it comes to innovation and new projects.
In the time that the group has been running there have been discussions around research projects directly involving patients receiving critical care, in-memory giving, and direct reviews and decisions about patient feedback questions, photos used for condolence cards and many more charity-wide projects.
The EAAA Patient Forum Group is a comfortable environment where former patients and families can add value to EAAA strategies. It empowers us to review and help improve and develop the future. It also offers reassurance and camaraderie. It’s given me the confidence to talk about my circumstances more openly.
— Terry Hawes, member of EAAA Patient Forum Group
If you are a former EAAA patient, or a family member and would like to help shape the future for EAAA as part of the Patient Forum Group, please get in touch.